Social Media Wiki

Pharma and Healthcare Facebook Page Deathwatch

With the coming changes to Facebook Commenting rules for pharma and healthcare companies on August 15, we thought it was important to track how companies would handle the change (read more details here). This page will keep track of what happens to all the Facebook Pages that we’ve been tracking on the Pharma and Healthcare Social Media Wiki. We’ll be updating this page regularly as we hear of Pages making changes.

If you know of any Page that has changed or will be changing their policy, will stay up, will be taken down, or if something’s not correct, please send it to us via the form at the bottom of this page.

Pages are organized into one of four categories.

  • Pages that are to be removed or already removed specifically because of the Facebook commenting changes.
  • Pages that currently do not allow commenting, so are prime candidates for removal. These are the Pages on “Deathwatch”.
  • Pages that currently allow commenting (and note that the walls have not fallen in around them).
  • Pages that have already been removed (note that this could have been for any reason and could have happened any time in the past).

Our view is, of course, that companies should allow commenting. Our rationale for this is summed up in this post, so check it out.

Hat tip to John Mack for describing these Pages as being on Deathwatch on Twitter somewhere. I liked that enough that I had to use it. The names of all the Pages that still exist are hyperlinked, so check them out now because they may not last long. If there’s no link, that means the Page is gone.

UPDATED: August 15, 2011

Pages that have been confirmed removed or will be removed due to changes in Facebook commenting policy.

ADHD Allies

ADHD Moms

Take on Depression

sanofi-aventis VOICES (combined with Sanofi Aventis US page)

Fit in Your Skin

New Way RA

August 15: New pages removed

Breakaway from Cancer

Epilepsy Advocate

Strong@Heart

Lysteda

Voices in PAH

MS Voices

In The Face of Pain

“Deathwatch” Pages. Pages that still exist, but could change since they currently do not allow commenting, so may be prime candidates for removal. (Note: allowing commenting via an application and not the native Facebook Wall counts as “not allowing comments”, as we believe leveraging the native Facebook functionality is a critical feature of any Facebook presence.)

CHOICE Campaign Facebook “Causes” App

Changing Possibilities in Hemophilia

Claritin Eye

Juvederm

LAP-BAND

Latisse

Lunesta

Lilly Careers (8/17, note: page is currently unavailable, so could be removed)

The Diabetes Dish

Botox Cosmetic

Salix Pharmaceuticals

Novartis Corporate

Pages that already allow commenting. (Note: And none of them have received a warning letter or notice of violation from the FDA)

UPDATED, 8/15 (9:45pm EDT): Pages moved from “Deathwatch” that now have comments and Likes appearing.

NyQuil

Pfizer

Sounds of Pertussis

I Am Pro Heart (PS: with 500 Likes already on its first post)

UPDATED, 8/17

Pfizer Turkey

Our Hemophilia Community

Sanofi-Aventis US Diabetes

GlaxoSmithKline (GSK) Corporate

Sanofi US (corporate)

Pages that have always allowed comments:

AstraZeneca US Community Connections (corporate)

AstraZeneca Careers

Boehringer Ingelheim Corporate

Claritin

Cleveland Clinic

The Coalition to Prevent Deep Vein Thrombosis (DVT)

Cooper Vision

Crest Whitestrips

CyberKnife

Donate Life America

Johnson & Johnson

J&J Nursing Notes

Mayo Clinic

MS Village Canada

Neurostar TMS

Night Nurse Nation

Lilly Oncology on Canvas

Nicorette

NatureMaid VitaminID

Prilosec OTC

Zicam

Accu Chek Canada

On Control Bone Marrow System

Allegra OTC

MaxClarity

My Alli

TogetherRx Access

Zimmer

Teva Pharmaceutical

Psoriasis 360

Roche Careers

Pages and applications that have been removed to date regardless of reason prior to August 15:

Acuminder

Acuvue Wink

Addressing Psoriasis

Bayer: 50 Years of the Pill

CCFA and Shire Virtual Walk

Cold-FX

Don’t Blow It

Gardasil Facebook Page

It Girl Essentials

Marcia Strassman Novartis Oncology

MS Champions

My CML Circle

Nexium

Novartis Clinical Trials

Prevacid24HR

Reclast “On the Go Women”

Team Hank from Genzyme

Covidien TussiCaps Cap the Cough

If you know of a Page that has been removed or is going to be removed, please use this form to let us know. Fill in the Credit URL field and we’ll give you credit when we post it. Alternatively, if you leave this blank, we won’t share your information with anyone, so you’ll be anonymous.

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  • http://www.facebook.com/witt.cassie Cassie Witt

    Wow! That’s quite a list. Do you think many of the pages on the “Deathwatch” list actually ready your blog? Hopefully this will give them a heads-up.

    • http://www.doseofdigital.com/ Jonathan Richman

      Good question. Looking at Google Analytics, about half of the visitors to my blog come from pharma companies (and other 1/3 from agencies that serve the industry), so many probably have some idea that we’re watching.

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  • http://twitter.com/JasonBoies Jason Boies

    Hi Jonathan,

    I’m just spitballing here but maybe this latest Facebook move will have Pharma companies moving toward creating their own homemade social media communities.  I’d use the Mayo Clinic as an obvious example of such a community.  It could provide them an environment that offers more control over privacy settings and a space for conversation around Pharma related topics among people in the same situations which they would be free to moderate as they see fit.  Just a thought I had as I read through countless Pharma/FB articles today.

    Keep up the good work here at DoD.

    Jason Boies
    Community Engagement, Radian6
    @Radian6

    • http://www.doseofdigital.com/ Jonathan Richman

      Thanks for the comment and kind words, Jason.

      Pharma companies might try this, but I’d predict failure if they did. Just thinking of how patients might look at this. Who would join a pharma company’s own social network when they can join an independent one without “Big Pharma” watching over them that’s already filled with a bunch of people? New social networks have a massive problem attracting new users away from what they’re using now, so most ever have any success. If pharma went this route, I’d predict they’d be one of those that didn’t find much success.

      • http://twitter.com/JasonBoies Jason Boies

        You may be right on this, I had some of the same concerns actually.

        Again, just spitballing. :)

        Cheers

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  • http://www.facebook.com/drneelesh Neelesh Bhandari

    Another great list. Thanks for compiling. By your permission, I plan to use it for one of my forthcoming talks in Mumbai ( Pharma) and will definitely credit you for it.

    • http://www.doseofdigital.com/ Jonathan Richman

      Sure thing. Good luck with it. Feel free to come back here and post a link to your talk.

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  • http://twitter.com/markhdavis Mark Davis

    Jonathan, I think you need a new category of those that have had the
    wall and other content wiped as of 8/15 as an intermittent step to an uncertain future.

    • http://www.doseofdigital.com/ Jonathan Richman

      Which Pages are you referring to? Some of the Pages that have nothing on the Wall have always had it like that believe it or not. They have been using Facebook as basically a website that happens to be on Facebook. Why they would do this is beyond me, as it offers no value beyond the website they already have, but that’s another story.

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  • Sven Awege

    Hi Jon, any feedback on http://www.pharmawall.com ? Does this tool work in the new Facebook set-up?

    • http://www.doseofdigital.com/ Jonathan Richman

      I’m not a fan at all and have said so in a number of places. I’ll copy a comment that I wrote on a Pixels & Pills post about PharmaWall here (original context: http://www.pixelsandpills.com/2011/07/01/pharmawall-tool-waiting/#comment-10477):

      I think I’m on the record in a few places saying that I don’t like this concept at all. While I’ll admit that PharmaWall is well done from a design and technical standpoint, I think that it (along with other Wall substitutes like it) suffer from a few limitations that are pretty serious.

      First, PharmaWall is an application. So, in order to use it, you must not only Like the page, but also give permissions to the application. In this case, the application wants access to your profile, to be allowed to post to your Wall, and to access your content anytime. Nothing sinister about this, but people don’t like giving permissions like this especially in the times of hypersensitivity to privacy on Facebook. They’re doubly likely to be hesitant when it comes from a pharma company’s page, as the industry isn’t exactly the most trusted out there. It’s a hassle to post, so people won’t.

      You have a choice. Either don’t be on Facebook or let Facebook work as people expect it to work. If you don’t allow Facebook to work as it is supposed to work (meaning open comments), then don’t bother. The reason for this is simple. No one will ever see your page or its content. The vast majority of people who go to Facebook start with their News Feed, which has content ranked based on an algorithm. THE key factors in this is “edge”, which is basically the past interactions between you and the page and the current number of Likes and comments on a piece of content. If you eliminate this last one (and PharmaWall interactions don’t count), then people never see anything from your page. Period. It’s like it doesn’t exist.

      PharmaWall says that it can “display messages in the news feeds of all Facebook members who have “liked” the page”. Sure. Assuming that the algorithm says it’s important, but it won’t and let’s not forget that this is a basic function of Facebook Pages already.

      Alerts are already built into Facebook, so you know when someone posts or comments. Deal with it then. What is going to happen if someone posts something off-label and you delete it after an hour of it being on the page? If the FDA thought that you were completely responsible for this content (i.e., it’s the same as you talking off label), then they would have cited a bunch of pages that have open commenting already. They would have clearly said in those non-existant warning letters that you should not allow commenting. But, you don’t have that.

      There are quite a few pages out there already from pharma that allow open commenting and guess what? Nothing. They work and no one gets a letter. People actually see the content in their News Feeds. The pages exist and people are engaged. What’s more, when you talk to the people that run these pages, you find that the posts that could be an issue almost never happen.

      Use Facebook the way people expect it to work or don’t bother. Really. No one sees your stuff if you ignore that rule and if you force people to jump through hoops to talk to you, then they won’t. Knowing that, why bother.

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